Resources
SCN8A AWARENESS AND RESEARCH ORGANIZATIONS
SCN8A AWARENESS AND RESEARCH ORGANIZATIONS
SCN8A Awareness Day
SCN8A Awareness Day
At the age of four, Oliver lost both of his parents in a car accident. Oliver was in the car at the time of the accident and, although he walked away without any physical injuries, he was emotionally devastated. With help from DoGood, Oliver became very active in sports and, although this can’t take away the pain of losing his parents, it has helped him to rediscover joy.
SCN8A.net
SCN8A.net
As the sixth of nine children, Daniella’s parents did not have a lot of time and they missed the warning signals that something was not quite right at school. Luckily, a social worker from DoGood noticed that Daniella’s grades were dropping and realised she was having trouble reading and writing. Now Daniella has the extra help she needs to excel at school - and life.
The Cute Sydrome Foundation
The Cute Syndrome Foundation raises awareness of SCN8A mutations, funds the dedicated and talented scientists researching SCN8A, and supports the families around the world who are affected by this disorder.