MOTIVATED FOR MAV
MOTIVATED
FOR MAV
We are on a mission to advance SCN8A Research through awareness and fund raising.
Learn More
We are on a mission to advance SCN8A Research through awareness and fund raising.
What is SCN8A?
What is SCN8A?
SCN8A Epilepsy is a rare disorder that is known to affect around 350 individuals worldwide--causing severe epilepsy, developmental delay, and other medical challenges. The gene SCN8A was isolated in humans by Michael Hammer, PhD, a geneticist who found the gene in his own daughter, Shay, soon after her death in 2011.
SCN8A Epilepsy is a rare disorder that is known to affect around 350 individuals worldwide--causing severe epilepsy, developmental delay, and other medical challenges. The gene SCN8A was isolated in humans by Michael Hammer, PhD, a geneticist who found the gene in his own daughter, Shay, soon after her death in 2011.
Our Focus
Our Focus
Mavrick was diagnosed with an extremely RARE from of Epilepsy, a genetic disorder called SCN8A. We are raising awareness & funds for research.
We need your help - your donations, your volunteer time, and your social media support!
Mavrick was diagnosed with an extremely RARE from of Epilepsy, a genetic disorder called SCN8A. We are raising awareness & funds for research.
We need your help - your donations, your volunteer time, and your social media support!
Awareness
Awareness
Little is known about SCN8A including an absence of established treatments, Like many rare disorders, families and their efforts to advance research offer the greatest hope for these beautiful children who deserve answers.
Donations
Donations
Thank you for your contribution to support families, researchers, and doctors that are working to improve the lives of children with SCN8A-related disorders.
Volunteer
Volunteer
Create hope and generate support for the families who are affected by this disorder through the amazing community of researchers, clinicians, and volunteers who are working to help the SCN8A community.
MAVRICK PEVERILL
MAVRICK PEVERILL
Anyone who has had the pleasure of meeting Mavrick, knows he's a smart, sweet, strong, loving adorable little boy. He's full of energy and has an imagination that doesn't quit. To watch him play and just be a boy is pure joy. He completes our family and fills our hearts with joy and love. He's a constant reminder to not take life and the little things for granted.
We would appreciate your help in ensuring SCN8A doesn't take any of that from us!
- Mike & Mellisa Peverill
Anyone who has had the pleasure of meeting Mavrick, knows he's a smart, sweet, strong, loving adorable little boy. He's full of energy and has an imagination that doesn't quit. To watch him play and just be a boy is pure joy. He completes our family and fills our hearts with joy and love. He's a constant reminder to not take life and the little things for granted.
We would appreciate your help in ensuring SCN8A doesn't take any of that from us!
- Mike & Mellisa Peverill
